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Original: 6/8/2007 12:37 AM
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Friday, June 08, 2007

The diagnosis....

 So today we went back to see the doctor and receive a diagnosis.  I wasn't nervous for the past couple of months but this morning I woke up and started freaking out.  The appointment was not until 12:45, which meant we needed to leave at 11.  The three hours between when we woke up and when we left I was so nervous.  So we got to the doctor's office and received a diagnosis: Asperger's Syndrome and Oppositional Defiant Disorder.  The doctor did say that these two diagnoses do not typically go together but they are the things that describe his symptoms best.  I had never heard of ODD today but I googled it once I got home and it fits him very well.  She recommended speech and occupational therapy for B along with family therapy for all of us.  She also recommended that he be placed with a teacher who is willing to learn about Asperger's and will work well with him along with Floortime training at home.  She did recommend seeing a psychiatrist to "evaluate him for possible medications that would help with some potential hyperactivity and his acting out."  We will not be doing that.

I talked with Fee this afternoon and she is going to send me a book about Relationship Development Intervention (RDI), which is similar to Floortime but Fee thinks that this will work better for B and I.  I trust her opinion, especially since she is using Floortime with her ds.  I am also hoping to find a way to start cranial sacral therapy and maybe chiropractic care with him.

I am a little overwhelmed with all that I have to do now.  It felt like my plate was so full already and now I must add more.  The most pressing things that I have to start doing:
  • Talking to people and getting recommendations for therapists.
  • Talking with the insurance company and finding out how much of what therapies will be covered.
  • Getting in touch with the school to find out what they will be able to do for him, especially the teacher placement.  The principal and I have talked about B's evaluation and my suspicions so he is aware that we would be receiving a diagnosis soon. 
  • Finding out what sort of state/government programs we would qualify for.
Right now I plan to take the weekend to absorb everything.  I want to go to the gym tomorrow and will be watching a neighbor's girl (dd's age) in the afternoon.  I can e-mail some people for a local autism support group and post on the Special Needs board at MDC for some advice on where to go. 

Ok, it is late and I am tired and rambly.  Cathy, I have your e-mail and I do plan to reply, I was just waiting to get this out of the way.  Thanks to all of you that have been so supportive to me through all of this.  It really means a lot that I have a few friends out there that I can call and talk to when I am totally spazzing out and get calmed down.

 Posted 6/8/2007 12:37 AM - 39 Views - 14 eProps - 7 comments

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7 Comments

Visit Jennifer_Z's Xanga Site!

I agree with Fee, floortime is awesome. 

I know that getting a dx like that is a bit nerve wracking and overwhelming, but in time, you will find your routine and it will be a lot smoother.  There is a lot of good literature about aspergers out there and I know I have seen stuff about ODD.  I imagine the SN boards will be a great resource for you. 

When you go to the school, try to have some social skills goals worked into the IEP.  There are social skills groups out there that can help also because it gives you ideas and networking with other parents and professionals.  Ack..Zora is up and demanding attention again, gotta go.

Posted 6/8/2007 1:05 AM by Jennifer_Z Xanga Premium Member - reply

Visit LynnE73's Xanga Site!
Everything will be fine Whore. There will be new people in your lives, new routines and tons of new information but you will all be the same family you are now.
Posted 6/8/2007 8:17 AM by LynnE73 Xanga Premium Member - reply

Visit shortandsnarky's Xanga Site!
That's a lot for you to handle but if you'll excuse the cliche, knowing what needs to be done is half the battle.
Posted 6/8/2007 8:30 AM by shortandsnarky - reply

Visit tifi's Xanga Site!
{V} my salsa
Posted 6/8/2007 9:09 AM by tifi - reply

Visit Cathiryn's Xanga Site!
Oddly, Jake's diagnosis was a relief to me because I could then get the school district to do all the things that he needed, but that they wouldn't do before. Once his diagnosis at school was Autism (they lump all Autism spectrum disorders together as Autism in our district), he could suddenly receive resource help, take part in social skills groups, individualize his learning through having more visual cues, etc. As sad as I felt that he was diagnosed, it was a huuuuuuuge help in his/my life, in regards to the public school system.

Anyway, hugs to you both today. It is a lot to take in, but there is so much help and information out there. Love ya!
Posted 6/8/2007 12:13 PM by Cathiryn - reply

Visit crowded_house's Xanga Site!
(((hugs)))
Posted 6/8/2007 2:30 PM by crowded_house Xanga True Member - reply

Visit RufusBeans's Xanga Site!
hugs, trish
Posted 6/13/2007 11:18 PM by RufusBeans - reply


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